full transcript

From the Ted Talk by John Wilbanks: Let's pool our medical data

Unscramble the Blue Letters

And open doesn't mean that there's no mnoey. clseod systems, corporations, make a lot of money on the open web, and they're one of the reasons why the open web lives is that corporations have a vested interest in the openness of the system. And so all of these things are part of the ccialinl study that we've created, so you can actually come in, all you have to be is 14 years old, willing to sign a contract that says I'm not going to be a jerk, basically, and you're in. You can strat analyzing the data. You do have to solve a CAPTCHA as well. (lhetuagr) And if you'd like to bliud corporate structures on top of it, that's okay too. That's all in the consent, so if you don't like those tmers, you don't come in. It's very much the design principles of a commons that we're trying to bring to health data. And the other thing about these systems is that it only takes a small number of really unreasonable people wnirkog together to create them. It didn't take that many pploee to make weipdkiia Wikipedia, or to keep it Wikipedia. And we're not supposed to be unreasonable in health, and so I hate this word "patient." I don't like being patient when systems are broken, and hleath care is broken. I'm not talking about the politics of health care, I'm talking about the way we scientifically approach health care. So I don't want to be patient. And the task I'm giving to you is to not be patient. So I'd like you to actually try, when you go home, to get your data. You'll be shocked and offended and, I would bet, oearutgd, at how hard it is to get it. But it's a challenge that I hope you'll take, and maybe you'll share it. Maybe you won't. If you don't have anyone in your family who's sick, maybe you wouldn't be unreasonable. But if you do, or if you've been sick, then maybe you would. And we're going to be able to do an experiment in the next several mtonhs that lets us know exactly how many unreasonable people are out there. So this is the Athena bsaert Health ntorwek. It's a study of 150,000 women in California, and they're going to return all the data to the participants of the study in a computable form, with one-clickability to load it into the study that I've put together. So we'll know exactly how many people are willing to be uanlbnrseaoe.

Open Cloze

And open doesn't mean that there's no _____. ______ systems, corporations, make a lot of money on the open web, and they're one of the reasons why the open web lives is that corporations have a vested interest in the openness of the system. And so all of these things are part of the ________ study that we've created, so you can actually come in, all you have to be is 14 years old, willing to sign a contract that says I'm not going to be a jerk, basically, and you're in. You can _____ analyzing the data. You do have to solve a CAPTCHA as well. (________) And if you'd like to _____ corporate structures on top of it, that's okay too. That's all in the consent, so if you don't like those _____, you don't come in. It's very much the design principles of a commons that we're trying to bring to health data. And the other thing about these systems is that it only takes a small number of really unreasonable people _______ together to create them. It didn't take that many ______ to make _________ Wikipedia, or to keep it Wikipedia. And we're not supposed to be unreasonable in health, and so I hate this word "patient." I don't like being patient when systems are broken, and ______ care is broken. I'm not talking about the politics of health care, I'm talking about the way we scientifically approach health care. So I don't want to be patient. And the task I'm giving to you is to not be patient. So I'd like you to actually try, when you go home, to get your data. You'll be shocked and offended and, I would bet, ________, at how hard it is to get it. But it's a challenge that I hope you'll take, and maybe you'll share it. Maybe you won't. If you don't have anyone in your family who's sick, maybe you wouldn't be unreasonable. But if you do, or if you've been sick, then maybe you would. And we're going to be able to do an experiment in the next several ______ that lets us know exactly how many unreasonable people are out there. So this is the Athena ______ Health _______. It's a study of 150,000 women in California, and they're going to return all the data to the participants of the study in a computable form, with one-clickability to load it into the study that I've put together. So we'll know exactly how many people are willing to be ____________.

Solution

  1. months
  2. closed
  3. laughter
  4. unreasonable
  5. outraged
  6. money
  7. clinical
  8. people
  9. start
  10. breast
  11. build
  12. terms
  13. wikipedia
  14. network
  15. working
  16. health

Original Text

And open doesn't mean that there's no money. Closed systems, corporations, make a lot of money on the open web, and they're one of the reasons why the open web lives is that corporations have a vested interest in the openness of the system. And so all of these things are part of the clinical study that we've created, so you can actually come in, all you have to be is 14 years old, willing to sign a contract that says I'm not going to be a jerk, basically, and you're in. You can start analyzing the data. You do have to solve a CAPTCHA as well. (Laughter) And if you'd like to build corporate structures on top of it, that's okay too. That's all in the consent, so if you don't like those terms, you don't come in. It's very much the design principles of a commons that we're trying to bring to health data. And the other thing about these systems is that it only takes a small number of really unreasonable people working together to create them. It didn't take that many people to make Wikipedia Wikipedia, or to keep it Wikipedia. And we're not supposed to be unreasonable in health, and so I hate this word "patient." I don't like being patient when systems are broken, and health care is broken. I'm not talking about the politics of health care, I'm talking about the way we scientifically approach health care. So I don't want to be patient. And the task I'm giving to you is to not be patient. So I'd like you to actually try, when you go home, to get your data. You'll be shocked and offended and, I would bet, outraged, at how hard it is to get it. But it's a challenge that I hope you'll take, and maybe you'll share it. Maybe you won't. If you don't have anyone in your family who's sick, maybe you wouldn't be unreasonable. But if you do, or if you've been sick, then maybe you would. And we're going to be able to do an experiment in the next several months that lets us know exactly how many unreasonable people are out there. So this is the Athena Breast Health Network. It's a study of 150,000 women in California, and they're going to return all the data to the participants of the study in a computable form, with one-clickability to load it into the study that I've put together. So we'll know exactly how many people are willing to be unreasonable.

Frequently Occurring Word Combinations

ngrams of length 2

collocation frequency
yellow fever 6
informed consent 4
united states 4
percent risk 3
clinical study 2
vast majority 2
clinical studies 2
gather information 2
gain informed 2
prostate cancer 2
filing paperwork 2
sample size 2
statistically significant 2
develop cancer 2
cancer survivor 2
health system 2
medical system 2
unreasonable people 2
health care 2

Important Words

  1. analyzing
  2. approach
  3. athena
  4. basically
  5. bet
  6. breast
  7. bring
  8. broken
  9. build
  10. california
  11. captcha
  12. care
  13. challenge
  14. clinical
  15. closed
  16. commons
  17. computable
  18. consent
  19. contract
  20. corporate
  21. corporations
  22. create
  23. created
  24. data
  25. design
  26. experiment
  27. family
  28. form
  29. giving
  30. hard
  31. hate
  32. health
  33. home
  34. hope
  35. interest
  36. jerk
  37. laughter
  38. lets
  39. lives
  40. load
  41. lot
  42. money
  43. months
  44. network
  45. number
  46. offended
  47. open
  48. openness
  49. outraged
  50. part
  51. participants
  52. patient
  53. people
  54. politics
  55. principles
  56. put
  57. reasons
  58. return
  59. scientifically
  60. share
  61. shocked
  62. sick
  63. sign
  64. small
  65. solve
  66. start
  67. structures
  68. study
  69. supposed
  70. system
  71. systems
  72. takes
  73. talking
  74. task
  75. terms
  76. top
  77. unreasonable
  78. vested
  79. web
  80. wikipedia
  81. women
  82. word
  83. working
  84. years